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Thursday, April 20, 2017
The Rett Syndrome Research Trust hosts the 3rd Annual Reverse Rett Chicago Gala, May 25 (Chicago,IL)
The Rett Syndrome Research Trust hosts the 3rd Annual Reverse Rett Chicago Gala, May 25
Rett Syndrome Research Trust (RSRT) will host its third annual Reverse
Rett Chicago Gala 6 p.m. Thursday, May 25 at Galleria Marchetti (825
West Erie Street, Chicago, IL). Since its launch in 2015, this event has
raised more than $500,000 to advance scientific research aimed at
reversing the devastating effects of Rett Syndrome, a developmental
neurological disorder affecting more than 350,000 people.
Rett Syndrome is a serious lifelong neurological disorder that is
caused by random mutations in a gene called MECP2. Diagnosed almost
exclusively in girls, symptoms typically appear in toddlerhood. Many
children with Rett are unable to speak, walk or use their hands.
Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal
and orthopedic issues are common. Inspired
by his sister Marissa Zelinger, who has suffered from Rett Syndrome her
whole life, Brad Zelinger of Deerfield, Illinois, along with his
parents Caryn and Allan, serve as co-chairs of the Reverse Rett Chicago
Gala to raise awareness and funds for RSRT. In the past two years, the Zelinger family's
efforts raised more than $500,000 for RSRT's research in finding
treatments and ultimately, a cure for Rett Syndrome.
generated from this event are crucial to making it possible for RSRT to
carry out Roadmap to a Cure, a three year, $33 million strategic
research plan that prioritizes projects such as gene therapy that target the root cause of Rett. RSRT's goal is to make Rett the first neurological disorder to be cured.
RSRT encourages the public to offer its generous support of this
promising and exciting cause. Last year, 350 guests attended Reverse
Rett Chicago for a meaningful night of socializing, fun and fighting
Rett. In addition to an open bar with cocktails and craft beer and small
plates from Ruth's Chris, Nando's Peri Peri, Taco Joint, Pete Miller's,
Federales, Cooper's Hawk, Panino's Pizzeria, Papa Joe's, Villa
Bernetti, Frost Gelato, Bittersweet Pastry Shop, Gail's Brownies, Eli's
Cheesecake, and Catered by Design, there will be jazz music and an
auction with prizes including Chicago sports tickets, hotel stays,
restaurants, experiences and more.
For more information about the event, follow Reverse Rett Chicago Gala on Facebook.
For those who cannot attend but would still like to donate to RSRT's cause, donate online with a credit card at www.ReverseRett.org/Chicago
or make checks payable to Rett Syndrome Research Trust (67 Under Cliff Road, Trumbull, CT 06611; 203-445-0041).
About Rett Syndrome Research Trust The
Rett Syndrome Research Trust (RSRT) was launched in 2008 to drive
research toward a cure for Rett Syndrome and related MECP2 disorders.
Its mission is urgent: 15,000 girls and women in the United States and
350,000 globally live with the agonizing symptoms of Rett Syndrome.
RSRT funds more research than any other Rett organization in the
United States and abroad. Since 2008, RSRT has awarded $42 million to
research. An average of ninety-six percent of every dollar donated to
RSRT goes directly to its research program. Keeping its internal team
lean and fiercely motivated allows RSRT to focus funds and energy on
what matters most: healing these children as quickly as possible.
As one of the few neurological disorders to show dramatic symptom
reversal in mice, Rett Syndrome has attracted unprecedented interest
from university and pharmaceutical scientists. Through innovative
research and constant engagement with scientists, clinicians, industry,
investors and affected families, RSRT is at the epicenter of this
RSRT does more than just write checks: it is changing the landscape
of Rett research. RSRT sets the research agenda by proactively
identifying and monitoring promising therapeutic areas, seeking out
scientific and industry partnerships and working closely with them to
advance programs through the drug development pipeline. RSRT is an
organization of risk takers who do not shy away from bold and innovative
projects unlikely to be funded by the NIH or other more conventional
RSRT believes Rett Syndrome can be cured, but time matters. A
rigorous, coordinated, and agile research agenda makes it possible to
reach this goal sooner. The ultimate goal is for Rett Syndrome and
related illnesses to become obsolete - by finding a cure. Learn more
about RSRT at reverserett.org. Like on Facebook and follow news on Twitter.